‘He changed from being a little boy who has waited for the world to act upon him to a little boy who is willing to act upon the world’
Jesse’s journey in the last year has been a remarkable one and his progress at Exeter Deaf Academy has astounded everyone. Read Jesse’s incredible story here.
Jesse is a 5 year boy with Charge syndrome, a rare disorder involving a number of different conditions including profound hearing loss, sight loss and mobility challenges.
Jesse’s parents Rachel and Joe had an extremely difficult time following Jesse’s birth with misdiagnoses and false hope given on a number of occasions. They fought for Jesse to come to Exeter Deaf Academy where they felt he would receive the best care and support and moved the whole family from London to enable Jesse to attend.
A special thank you to Jesse’s parents Rachel and Joe for sharing their story.